Rare Disease Day is an annual observance held on the last day of February each year. It was established to raise awareness about rare diseases and their impact on people's lives. The date, February 28th (or February 29th in leap years), was chosen because it's a rare day on the calendar.
The main objective of Rare Disease Day is to improve understanding among the general public, policymakers, researchers, and healthcare professionals about rare diseases and their impact on patients' lives. The day also aims to advocate for access to treatment and medical representation for those with rare diseases.
Various events, campaigns, and activities take place worldwide on Rare Disease Day to promote awareness and support for individuals and families affected by rare diseases. Many patient organizations, advocacy groups, and healthcare institutions participate in these efforts to shed light on the challenges faced by those living with rare conditions.
No comments:
Post a Comment